A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.

• DirectorPatrick Collerton
• Release25 March 2004
• GenreDocumentary
• Duration0h 50m
• Budget?
• Revenue?
• Rate
  

  7.5
  8 reviews
• Productions

  Channel 4 Television, Yipp Films Ltd